Call for adults to receive access to Spinraza reimbursement

Yesterday, the HSE announced that it had approved access to the drug Spinraza for children who suffer from a rare muscle wasting disease known as Spinal Muscular Atrophy.

The condition effects around 25 children living in Ireland, and causes problems with movement, muscle weakness and can often lead to difficulty breathing. Just over 2.4 billion euro of the HSE’s budget is spent on drugs and medicines.

Speaking to Northern Sound News today, Local TD and Sinn Fein spokesperson on disability rights Caoimhghín Ó Caoláin welcomed the HSE’s decision but says it does not go far enough, as it only allows for the reimbursement of the cost of the drug to be given to those under eighteen: