Marilyn O’Connor from Cavan was given the life changing diagnosis of motor neurone disease back in August.
Despite the initial shock, Marilyn says she is experiencing the most "unbelievable peace" and "acceptance" of her condition.
According to Marilyn, she is determined to share her story with the world and create a better awareness about this condition.
Speaking to Northern Sound, Marilyn says she would like to be a beam of light for people who are suffering in silence and who are filled with fear.
"I'm not afraid to die but it’s how cruel the disease is... It strips you of everything you are as a human being," she said.
Marilyn also wants to encourage people to not be ashamed of their disability or illness, despite the stigma.
As a result, the Cavan woman has organised a Valentine's Ball titled 'Dance While You Can' which will take place in the Cavan Crystal Hotel on the 10th of February.
The funds will go towards MND for purchasing equipment, increasing more specialist nurses and also finding a cure through research.
Marilyn is hoping people will lend their support to help raising funds for this worthy cause as she will be setting up the links where people can send their donations through to MND directly:
